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Welcome to the KSG Blog! Tell us what you think by emailing support{@}ksginfo.org .

December – 2025: Added links for an article about clinical trials for people with rare diseases . This is an important article about how Clinical Trials can benefit and harm people with rare diseases.

January 2025 – updated “meet other families” section. Added information about children’s summer camps.

May 2024: BMI and People with Dwarfism: everything you wanted to know but were afraid to ask

January 2024: Resources for new families: I just found out my baby has SED? What do I do?

December 2023: Check out new website content:

October 2023 – Top 10 Things Not to Say to a Person with Dwarfism