KSG Information
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Our Stories

Sweet picture of a young child with SEMD holding a frisbee.

In Our Own Words

Brittani’s Story

By Brittani, an 18-year old with Kniest. High School Dating Scene I am 18 and a sophomore in college and know all too well the fun of dating with a…

Got Retinal Detachment??

Written by Marylou, a woman with Kniest. Floaters and flashes… signs of retinal tears and detachment. Marylou needed a new retinal specialist in a hurry. Thanks to good friends like Rosa, scheduling…

It’s Not Fair

An averaged-sized mom and her daughter with Kniest learn, scream, pray, grieve, and grow together. By Delia, parent of an 8-year old girl with Kniest. My daughter asked me about her…

Musing about fashion and fitting in

By Monica, a woman with SED who is 2’8″. True, fashion is one way teens try to fit in a group and yet express themselves as an individual. Thinking back…

Not Short on Talent

By HP Poudre’s Sarah Hunt, a dwarf, ranks among elite swimmers Sarah Hunt dives in the water and begins pumping her arms and kicking her legs in a furious manner –…

Trevor and Pierre Robin Syndrome

A child with SED and Complications at Birth Written by Jenny, a parent of Trevor with SED and Pierre Robin Syndrome. Trevor is now twelve years old. He had a vent until age…

Your Child with SED

Your child with SED from Birth to 36 months Written by Christine, a parent of a child with SED Infants and children diagnosed with a form of Dwarfism are entitled…

Meet Families with KSG

Conferences

  • https://www.lpaonline.org/national-conference – Annual Little People of America Conference. Scholarships are available for people attending conferences for the first time.
  • Dwarf Athletic Association of America: DAAA was founded in 1985 with the mission to provide athletic competition, guidance, support and information to people of short stature and to their families. DAAA organizes a competition annually in conjunction with the LPA National Conference to provide sports in a safe and controlled competition. DAAA expects more than 200 athletes competing in a variety of sports.
  • Stickler Involved People Conference: http://stickler.org/

Children’s Camps

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Movies

Books

Parenting Books

Adult Books

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Social Media

Blogs

  • I wear shirts as dresses Doris is a 20-somethin year old full time paralegal by day and fashion illustrator/content creator by night! She started “I wear shirts as dresses” mainly for two reasons. First, to simply blog, showcase her own art work and share about her love of fashion. To share her wants, difficulties, outfits, findings in fashion…and what it’s like to live in this scary fashion world as a woman standing at three feet seven inches. The second reason was in hopes to make this blog a useful resource to other little people or for stylish moms who want to make sure their little girls are the best dressed!

Facebook

Instagram

Podcasts

  • Christophe Zajac-Denek’s amazing podcast: https://ivy.fm/podcast/im-kind-of-a-big-deal-785017?tag=dwarfism: Christophe is 4’4” tall, as a result of a rare form of dwarfism, and is a journalist, audio story producer, drummer, actor, stuntman, entertainer, businessman, and an avid surfer. His show lifts the veil on this unique world by talking to people directly affected by dwarfism.
  • Always Looking up: A podcast dedicated to telling honest and real stories about living in a world that was not necessarily designed for us. A wonderful podcast by and about little people! Dozens of awesome, though-provoking episodes!

TikTok

Twitter

Websites

  • Read stories by and about people with dwarfism on the Understanding Dwarfism website.
  • https://christophezd.com/advocate/: Christophe Zajac-Danek is driven by his mission of raising awareness for people with differences –  specifically dwarfism. He believes people develop the most acceptance and understanding through intentional visibility and exposure.
  • Peggy O’Neill, motivational speaker and little person

Youtube

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