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KSG Information and Support Website

Kniest, Spondylometaphyseal Dysplasia, Spondyloepimetaphyseal dysplasia and related conditions info and support group.

  • Welcome
  • Where Do I Start?
  • Medical Information
    • SMD-K
    • SEDC
      • SEDC Growth Chart
    • Kniest Dysplasia
    • Anesthesia
    • Back and Neck
      • Halocast
    • Eye Care
    • Hip Problems
    • IV Placement
    • Knee Problems
    • Pierre Robin Syndrome
    • Overheating
    • Medical Terms
  • Do Your Own Research
    • Clinical Trials
    • Back Braces
  • Exercises and Alternative Therapies
    • Coping with Pain
  • Advocacy
  • Clothing that fits!
    • Shoes
    • Clothes for young adult/adults
    • Tips for Infants and Toddlers
    • Adaptive Clothing for People with Disabilities
    • Patterns – make clothes from scratch
    • Jewelry
  • Adaptive Equipment
  • Adaptive Computers
  • Family Stories
    • Books by and About People with Kniest/SED/SMD
    • Films and Videos
    • Articles
    • Not Short on Talent
    • Your Child with SED
    • Trevor and Pierre Robin Syndrome
    • Got Retinal Detachment??
    • Musings on fashion and fitting in
    • It’s not fair!
    • Brittani’s Story
  • Events, conferences, and children’s camps
  • About KSG
  • What’s New!
  • Contact

What’s New

What’s new on the KSG Info Website?

  • July 2021: updated list of Skeletal Dysplasia Clinics, updated shoes section.
  • June 2021: added chairs section to Adaptive Equipment page, updated clothes section. Added adaptive clothing section for people with disabilities.

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