Many children and adults with Kniest, SED, and SMD notice that they often feel hot. This is not true for everyone with the diagnosis. We do not know of any studies on this, but several member have mentioned feeling hot most of the time. Possible reasons given for this:
- The larger body volume compare to smaller total skin surface area somehow has an effect on cooling. Compare the shape of a polar bear to a giraffe. If you are short and round like a you will feel warmer than someone who is tall and thin.
- Some people are just always hot. Some are also always cold.