Medical Providers familiar with Kniest, SED, or SMD
Disclaimer
The Kniest SED Group provides references to medical providers as a free service to people with Kniest, SED, and SMD. We are not financially associated with any provider.
We can not take responsibility for outcome of care to any of these medical providers. Please also see main web page disclaimer.
Medical Providers Familiar with Dwarfism in Africa
- Contact support groups in Africa
- Skeletal Dysplasia Clinic
International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
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Medical Providers Familiar with Dwarfism in Asia
- Contact support groups in Asia
- Skeletal Dysplasia Clinic
International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
Medical Providers Familiar with Dwarfism in Europe
- Contact support groups in Europe
- Skeletal Dysplasia Clinic
European Skeletal Dysplasia Network: http://www.esdn.org/
ESDN comprises 8 partners in 6 European countries and provides an integrated research and diagnostic network for skeletal dysplasias. - Skeletal Dysplasia Clinic
University Children’s Hospital at the University of Zurich, Switzerland: http://www.kispi.unizh.ch/
This hospital provides assistance in diagnosis, tissue samples, and X-rays. - Skeletal Dysplasia Clinic
International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
North America
Medical Providers Familiar with Dwarfism in Canada
Medical Providers Familiar with Dwarfism in United States of America
- Little People of America Medical Advisory Board: http://www.lpaonline.org/lpa_mab.html. LPA is also compiling a list of providers.
- International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Skeletal Dysplasia Clinic
The Northern California Skeletal Dysplasia Clinic in Oakland, California:
http://www.dor.kaiser.org/genetics/OurServices/SkeletalDysplasiaMain.html.
This is a joint program between Kaiser Permanente Northern California and Oakland Children’s Hospital, http://www.childrenshospitaloakland.org/. This multispecialty clinic alternates between the Kaiser Oakland California Genetics department and Oakland Children’s Hospital. - Skeletal Dysplasia Clinic
Alfred I. duPont Hospital for Children in Wilmington, Delaware: http://kidshealth.org/
Their site contains some clinical cases. Pediatric Orthopedic Unit http://gait.aidi.udel.edu/res695/homepage/pd_ortho/orthhome.htm. - Skeletal Dysplasia Clinic
Greenberg Center for Skeletal Dysplasias, Baltimore, Maryland: http://www.hopkinsmedicine.org/greenbergcenter/Greenbrg.htm
The Greenberg Center web page has clinical summaries on-line and some good tutorials on genetics. - Skeletal Dysplasia Clinic
Skeletal Dysplasia Clinic in Akron, Ohio: www.akronchildrens.org/cms/site/75ec466dc67c481a/index.html.
There are a few short biographies of some of the patients who are part of the clinic. - Skeletal Dysplasia Clinic
Hospital for Special Surgery Skeletal Dysplasia Center, New York City, New York.
Call (212) 774-7332 or email csd@hss.edu for more information.
535 East 70th Street/New York, NY 10021.HSS also provides a free physician referral service: Call (212) 606-1753 or 1-866-749-7047 (U.S. Only), 9 a.m. to 5 p.m., Monday – Friday.
- Skeletal Dysplasia Clinic
Skeletal Dysplasia Clinic in Texas: http://imgen.bcm.tmc.edu/molgen/cg/clinics/sd_index.html
The Skeletal Dysplasia Clinic meets on the second Friday afternoon of each month in the Orthopedic Suite in the Feigin Center, at Texas Children’s Hospital. - Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
Medical Providers Familiar with Dwarfism in South America
- Contact support groups in the South America
- Skeletal Dysplasia Clinic
International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
Medical Providers Familiar with Dwarfism in Australia and New Zealand
- Support groups in Austalia and New Zealand
- Skeletal Dysplasia Clinic
International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications. - Recommend a medical provider familiar with Kniest, SED, and SMD in New Zealand or Australia to add to this page: support@ksginfo.org.
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