Medical Providers

Medical Providers familiar with Kniest, SED, or SMD

Disclaimer

The Kniest SED Group provides references to medical providers as a free service to people with Kniest, SED, and SMD. We are not financially associated with any provider.

We can not take responsibility for outcome of care to any of these medical providers. Please also see main web page disclaimer.

Medical Providers Familiar with Dwarfism in Africa

  • Contact support groups in Africa
  • Skeletal Dysplasia Clinic
    International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
    The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications.

  • Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.
    We need your help to make this page as complete as possible.

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Medical Providers Familiar with Dwarfism in Asia

  • Contact support groups in Asia
  • Skeletal Dysplasia Clinic
    International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
    The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications.

  • Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.

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Medical Providers Familiar with Dwarfism in Europe

  • Contact support groups in Europe
  • Skeletal Dysplasia Clinic
    European Skeletal Dysplasia Network: http://www.esdn.org/
    ESDN comprises 8 partners in 6 European countries and provides an integrated research and diagnostic network for skeletal dysplasias.

  • Skeletal Dysplasia Clinic
    University Children’s Hospital at the University of Zurich, Switzerland: http://www.kispi.unizh.ch/
    This hospital provides assistance in diagnosis, tissue samples, and X-rays.

  • Skeletal Dysplasia Clinic
    International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
    The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications.

  • Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.

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North America

Medical Providers Familiar with Dwarfism in Canada

Medical Providers Familiar with Dwarfism in United States of America

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Medical Providers Familiar with Dwarfism in South America

  • Contact support groups in the South America
  • Skeletal Dysplasia Clinic
    International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
    The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications.

  • Recommend a medical provider familiar with Kniest, SED, and SMD to add to this page: support@ksginfo.org.

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Medical Providers Familiar with Dwarfism in Australia and New Zealand

  • Support groups in Austalia and New Zealand
  • Skeletal Dysplasia Clinic
    International Skeletal Dysplasia Registry, Los Angeles, California: http://www.csmc.edu/genetics/skeldys
    The registry is part of the Cedars Sinai hospital and stores X-rays, tissue samples, and clinical information. They also assist with diagnosis of conditions, as well as collaborative publications.

  • Recommend a medical provider familiar with Kniest, SED, and SMD in New Zealand or Australia to add to this page: support@ksginfo.org.