Family Stories

Picture Gallery

These photos are copywrited and may not be copied for any use.

Books by and About People with Kniest/SED/SMD

• Book of Poetry by Fiona Porch, a women with Kniest: Soul Cried: Expressions from the Heart
• A biography by Fiona Porch, a woman with Kniest. Me, Kniest & Understanding: Embrace the life you gain, When you push through the pain
• List of books about dwarves (fiction and non-fiction): https://www.lpaonline.org/non-fiction-
• Authors who are also members of Little People of America:https://www.lpaonline.org/lpa-authors-
• List of books from Birth Disorder Information https://www.lpaonline.org/lpa-authors-

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Films/Videos

• Watch Fiona Porch’s amazing music video Find the Strength Within and visit her website https://fionaporch.com .

• Annie, and 11 year-old with SED, shares her story on youtube.

• Dasha, a college student, with SED.

• Sofia Cheyenne’s youtube channel. Sofia is a Performer, Teaching Artist, and Disability Advocate, and mom with SED. Start with her be you tiful video.

Actors with SED

• Actor Warwick Davis and his daughter Annabelle Davis .
• Michael Dunn
• Lenny Rush

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Articles and life stories
about Little People and by Little People

• Read about Dr. Jennifer Arnold, a pediatrician with SED: http://www.post-gazette.com/healthscience/20010807hlittledoc3.asp.

• For a more comprehensive list, go to the LPA on-line library and scroll down to ‘Articles and essays about dwarfism’: http://www.lpaonline.org/resources_library.

• Marylou, a 3’11” woman with Kniest and her workshops for innovative solutions to heighten the quality of your life: http://www.high10yourlife.com.
  
  
• Read Dan Kennedy’s book, Through my Daughter’s Eyes: http://www.dankennedy.net/littlepeople.html. This is an excellent book written by an average-sized father about his daughter who has achondroplasia. It also covers the history of dwarfism and how dwarfs are viewed in American society today.
  
• Dr. Michael Ain is an orthopedic surgeon with achondroplasia.
  

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In Our Own Words

Essays by people with SED, SMD, and Kniest, and their families.

The views expressed in these writings are those of the writers. Please contact us to get permission before quoting or citing these essays.

• It’s not fair!
  An averaged-sized mom and her daughter with Kniest learn, scream, pray, grieve, and grow together.
  
• High School Dating Scene
  An 18 year old with Kniest writes about faith, socializing, speaking up for yourself, and dating.
  
• Musing about fitting in
  A woman with SEDC who is 2’8″ describes how she fit in as a teenager when she was unable to find the latest fashion clothes in her size, and how her parents helped.
  
• A child with SED and Complications at Birth
  Written by a mother of a child with SEDC, Pierre Robin Syndrome, and birth complications
  
• Your child with SED from Birth to 36 months
  Written by a parent of a child with SED.
  
• Got retinal detachment?
  Floaters and flashes… signs of retinal tears and detachment. Marylou needed a new retinal specialist in a hurry. Thanks to good friends like Rosa, scheduling a doctor’s appointment was a snap.
  
• A young woman with SEMD who is a competitive swimmer

• Short Person’s Support essays about being a short person: http://www.shortsupport.org/Essays/index.html
  
• Visit the Dwarf Artists Coalition page: www.freshsprout.com/dac_index.html. Links to dwarf artists’ sites, art events, and more dwarfism links. You’ll want to add this great resource to your bookmarks!
  
• Do you have something you’d like to add here? Would you like to see other articles? Please contact us.