Don’t hesitate to reach out with the contact information below, or send a message using the form.
- For general questions about SED or SMD or Kniest, please email email@example.com.
- To contact an adult with Kniest, please email Marylou: firstname.lastname@example.org or visit her website http://www.high10yourlife.com.
- To contact a parent of a child with Kniest Syndrome and Pierre Robin Sequence, email Deslie: email@example.com.
- To contact the parent of a child with SMD-Kozlowski, email Laura: firstname.lastname@example.org.
- To contact the parent of a child with SEDC, email Laurie: email@example.com.
- To contact someone with SEDC who has had a hip replacement, please email Laura: firstname.lastname@example.org.
- For help with car modifications contact Casey, a dwarf and Driver’s Ed instructor: email@example.com.