Coping with Pain

Suggestions From Families
with SED, SMD and Kniest and people with Dwarfism

Due to unusually formed joints and bones and collagen problems, people with Kniest, SED, and SMD often have joint or back pain. The following is a summary of what some people with SED and SMDs do to manage pain. There are also medical procedures and medications which can help. Life is too short for unnecessary pain. Please contact us with questions or comments.

This page was made up from tips from the Kniest/SED/SMD listserve:

Navigation links to other sections of this website.


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Helpful For Pain Relief

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Alternative/Complementary Medicines

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Tips for Children Having Pain

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Where to go for More Information

Do you have ideas for things to try that are not on this list? Please contact us:

End of Coping with Pain page
Kniest SED Group web page.


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