Events Page for the Kniest SED Group Newsletters, Conferences, and Children's Camps for people with Dwarfism, Health Advocacy, and Medical Providers Please click on Newsletters Conferences Children's Camps 2006 Little People of America Calendar Confused? Don't know where to start? Visit the Where Do I Start? page . Click here for navigation links to other sections of this web site.

Newsletters

• Little People's Research Fund Newsletter: http://www.lprf.org/newsletter.html (last checked March 2004)
  
  
• Stickler Involved People quarterly newsletter: http://www.sticklers.org/sip/news.html
  
  
• Little People of America newsletter: http://www.lpaonline.org/lpa_lpatoday.html
  
  
• Protection & Advocacy, Inc. newsletters: http://www.pai-ca.org/Pubs/401401.htm. This collection dates back to 1996 and contains a tremendous amount of information.
  
  
• Weekly newsletter from the Philanthropy News Bulleting, updated weekly with new funding opportunities! http://fdncenter.org/pnd/rfp/cat_disabled.jhtml (last checked April 2004)
  
  

Newsletters section under construction. Please check here or the What's New page for updates.

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Conferences

There are medical conferences which focus on skeletal dysplasias, related health issues, genetics, and health advocacy. It is useful to know about these. If you can not attend the conference, consider obtaining and browsing the conference materials. Most conference post the papers and contact information for presenters.

These meetings can yield important information. Conference materials can also sometimes be great references or ways to find medical professionals who are studying specific conditions.

• 2006 Little People of America Conference in Milwaukee
  
• Please come to the KSG events at the 2006 Little People of America Conference in Milwaukee.
  
  Kniest SED Group Workshop:
  Tuesday July 4th, 10:00 am - 11:15 am
  Marylou Naccarato, KSG President - www.ksginfo.org
  

  An interactive dwarf specific workshop led by members of the KSG, will provide tips and strategies on how to deal with the medical maze of health care, parenting, your child's school, physical therapy/exercise, love/social relationships, college, and career choices

  
  Immediately Followed by
  Kniest SED Group Forum:
  Tuesday July 4th, 11:15 am - 12:30 pm
  

  Open to All! Individuals with Kniest & SED (of all variant types), family members and supporters are encouraged to attend an enjoyable social and interactive forum. Group photo and a short meeting to discuss the KSG's mission, goals and future projects. Meet the KSG officers and others with your type of short stature. Form friendships that will last a lifetime!

  Note: This year we will have elections...your participation will help keep our wonderful group going strong...please consider running for a position or encourage someone you know...Thanks
  !

Three members of the Kniest SED Group. The woman in in the middle wearing red has Kniest. The women to her left and right have SEMD Strudwick. All photographs on this Web site are the copyrighted property of the individuals pictured, and have been posted with their permission. All rights reserved. To obtain legal copies of these photographs for any purpose whatsoever, email support@ksginfo.org

• 2006 Little People of America Calendar
  
  
• Conferences for adaptive computer use: http://www.utoronto.ca/atrc/upcoming.html
  
  
• The HUM-MOLGEN (Human Molecular Genetics) calendar of conferences for 2006: http://www.hum-molgen.de/meetings/meetings/
  
  
• Calendar from George Washington Health Resource Center: http://www.heath.gwu.edu/Calendar%20of%20Events.dwt
  
  
• Calendar from National Association of County and City Health Officials, list of health-related conferences: http://www.naccho.org/calendar.htm
  
  
• See events on the Dwarf Artists Coalition page: www.freshsprout.com/dac_index.html.
  
  
• American Society of Law, Medicine, and Ethics calendar: https://www.aslme.org/aslmesecure/calendar.php
  
  
• List of Centers for Disease Control and Prevention calendar: http://www.omhrc.gov/omhrc/calendar.htm
  
  
• The third Africa Genome Initiative Conference will be held in Nairobi, Kenya in March 2006 http://www.africagenome.co.za/index.html
  
  

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Children's Camps

While all children's summer camp and other overnight programs must by law accommodate children with dwarfism, some children also benefit from attending camps specifically for people with dwarfism:

• Camp Little People in Millville PA, June 10-12, 2005: www.camplittlepeople.org.
  
  Camp Little People (North East). Contact: Joyce Davis, Camp Director.
  150 Mill St., Benton, PA 17814
  Phone: (570) 925-5971, Email: clpfamilyfun@jlink.net or Bksmusiclover@aol.com
  
  
• Camp Victory offers many different camps each summer. They have programs for children with allergies, autism, cancer, spina bifida, hard-of-hearing, physical disabilities and other complex health problems.
  
  
• The Pediatric Network's list of summer camps for children with disabilities and chronic illnesses: http://www.pediatricnetwork.org/links/camps.htm
  
  
• List of Disability Camps from Disability Central
  
  
• National Center for Physical Activity and the Disabled list of summer camps, with resources all over the USA: http://www.ncpad.org
  

• If you find a good children's camp for children with dwarfism that is not on this page, please contact us!

End of Newsletters and Events Page
for the Kniest SED Group