Events Page for the Kniest SED Group

Newsletters, Conferences, and Children's Camps
for people with Dwarfism, Health Advocacy, and Medical Providers

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There are medical conferences which focus on skeletal dysplasias, related health issues, genetics, and health advocacy. It is useful to know about these. If you can not attend the conference, consider obtaining and browsing the conference materials. Most conference post the papers and contact information for presenters.

These meetings can yield important information. Conference materials can also sometimes be great references or ways to find medical professionals who are studying specific conditions.
Picture of women at a KSG event
Three members of the Kniest SED Group. The woman in in the middle wearing red has Kniest. The women to her left and right have SEMD Strudwick.

All photographs on this Web site are the copyrighted property of the individuals pictured,
and have been posted with their permission. All rights reserved. To obtain legal copies of these photographs for any purpose whatsoever, email

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Children's Camps

While all children's summer camp and other overnight programs must by law accommodate children with dwarfism, some children also benefit from attending camps specifically for people with dwarfism:

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