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Welcome to the KSG
(Kniest SED Group) page

for
Kniest, Spondylometaphyseal Dysplasia (SMD), Spondyloepiphyseal Dysplasia (SED),
and all variant forms of SED and SMD!

Do you or does someone you love have Spondyloepiphyseal Dysplasia (SED) or Spondylometaphyseal Dysplasia (SMD) or Kniest? This web site is designed to provide information about these medical conditions in clear and understandable English. Its purpose is to give people with these rare skeletal dysplasias support, information, and tools to do their own research.

We are not doctors, but were born with rare conditions and have done a lot of our own research. We hope to bring new people of short stature and their families into the Little People of America community as well as help individuals get the medical care they need. We work with medical providers help them research these rare conditions and foster appropriate research. The information on this website is for informational purposes only and no medical decisions should be based on its contents.

KSG Web site contents: We hope you will find what you need on the Kniest SED Web Site. If not please contact us.


New diagnosis Medical Information Tools to help (special clothes, funiture, and stores for little people) Advocacy Social Support Other KSG Web Page Features
View or sign our guestbook.

Keep up with what's new on the site, Join the KSG Accouncement List.

Become a member of KSG

Join the  SED, SMD, and Kniest e-group

Find a doctor or medical provider near you

Browse the table of contents, a detailed site map of everything on this page.

Search the site.


This page was last updated in April 2006.

You are new visitor # Counter box since October 2003,

Thank you for visiting. Please contact us if you have any comments or questions.


Disclaimer

This web site is not intended to diagnose or treat any condition. This web site is for informational and educational purposes only. Each person should consult a medical doctor regarding any health concerns. This web site is not a complete reference and the accuracy of its contents cannot be guaranteed.

By getting information from this web site, you agree to hold harmless the authors of this web site from any and all liability arising directly or indirectly from your use of this information.

Although every effort has been taken to produce an accurate informational web site, all information should be verified independently. The information on this website is for informational purposes only and no medical decisions should be based on its contents.

This web page is not associated with any organizations referred to on this page. External links are provided only for the convenience of the web page user. We are not responsible for any problems that occur due to the information included or omitted from this web site and the external links.

All photographs on this Web site are the copyrighted property of the individuals pictured, and have been posted with their permission. All rights reserved. To obtain legal copies of these photographs for any purpose whatsoever, email support@ksginfo.org.

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Web Page Accessibility
This web page is done using minimal graphics so it will download fast and be accessible to all browsers, including speaking browsers used by the blind. All HTML coding was done using a text-editor.

If you have any suggestions about this page's accessibility, please contact Cécilie: support@ksginfo.org.

For more information about web page accessibility, please visit the following pages:

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Contacts
This page was co-written by Ronna and Cécilie and is also the web page for the Kniest SED Group.

To find more families with Kniest, Spondyloepiphyseal Dysplasia, and Spondylometaphyseal Dysplasia

Group Picture from KSG conference
This group photo was taken at a KSG event .

All photographs on this Web site are the copyrighted property of the individuals pictured, and have been posted with their permission.
All rights reserved. To obtain legal copies of these photographs for any purpose whatsoever, email support@ksginfo.org.

 

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Thank Yous and web page dedication

Thanks to Mousehouse web design for their skilled efforts in the web page redesign!
Thanks to Jean Nandi and Barb Rhodes for patiently teaching me how to make web pages accessible.
Thanks to Little People of America for bringing support, hope, and fun to so many people.
Thanks to Evelyn and Joan for their superb help editing.
Thanks to Spike who at 5 lbs produces more love per pound than any other four-footed being on the planet.
Thanks to Eric for everything and for managing, even at 72 inches, to produce more love per inch than any two-legged being on the planet.

Thanks to Daniel from Ronna.

Dedication
This page is dedicated to Sue and her service dog Felix. Sue's strength, intelligence, sense of humor, and desire to make this world a better place for people with disabilities has been a tremendous inspiration. Felix, a service dog from Canine Companions for Independence (http://www.caninecompanions.org/) spends his days helping Sue and hoping to make new friends who will throw a tennis ball for him when he is off duty.

 

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©2005 Kniest SED Group